YouTube - Fragile X Syndrome

I found this on YouTube...Thought I'd share it. I beleive my kids were a gift from GOD. He trusted me with these to angels...

YouTube - Fragile X Syndrome

He does'nt know how....

Ave: Who's gonna tend us today?
Me: Well, I'll be home until 3:00 then I have to go to work. Daddy will be home at 5:00. You and sissy will be by yourselves for a little while.
Ave: When will you be home?
Me: You will be in bed when I get home.
Ave: I'll be sleeping?
Me: Yes
Ave: Well, who's gonna make dinner?
Me: Daddy will take care of it
Ave: He does'nt know how to make dinner.
Me: He what???
Ave: He does'nt know how mom. I'll just have RabbaDabbies. (canned ravioli)

Avery and Kayla playing Twister.

So Im listening from downstairs of K. and Avery playing Twister. K. is the spinner and Ave is on the mat.
K.- You do what I tell you to do.
Ave-Ok
K.- Right foot, blue. No, the other foot.
Ave-(nothing)
K.-Left hand, yellow. No, Avery, put it here.
Ave(nothing)
K.-left hand red. MOVE your hand that is on the yellow to a red.
Ave--FINE!!!
K.-How bout you be the spinner?
Ave-ok
Ave-right foot, yellow.
Ave-left hand blue.
K.--Lets just go outside Avery.

Enough of that, I guess.

Horseback Riding

After much anticipation and excitement, we finally started Theraputic Horsback Riding. Ive heard how beneficial this is for kids with disabilities. We found a place, not so close by, but I was willing to drive due to the great reputation this place has. Our intake appointment went great. L. was so great with the kids and they even got to get on horses that day. Ave seemed a bit nervous to get on and off the horse and was doing the choke-hold around L's neck but she didnt seem to mind. She was great. I knew this would be the place. So we go back last Thurs. for our first official class. Umm, didnt go as well. Emmy did great. She really has a knack for this. She had confidence, poise, and balance like she'd been doing this for years. Ave, on the other hand did not. He was so fearful that it resulted in a few disasters. M. is the teacher, not L. which was a concern for the beginning. She has more of a gruff personality and was quite forceful with him. He flat out wasnt going to do the task at hand and began slapping the helpers. One of them ended up with nice shiner on her eye. Sorry again T. Goll, I really felt bad. Ive never seen him act that violently. He's really an easy going boy. He just acted out of extreme fear. When we left, both Ave and I were in tears. What was I going to do? I had paid all that money up front and Emmy was on cloud 9. What was I going to do? Just then, I received a phone call from L. She just called to get our schedule finalized but as soon as I heard her voice, I broke down. I told her what had happened and that I didnt think he would want to come back. She encouraged me and said she would help next time and speak to M. about doing things differently with Ave so he can begin to trust her. I felt better. So yesterday was our next class. L. was no where to be found. I began to get nervous. Finally, I took it upon myself to talk to M. I explained that he was reacting out of fear and that he needs to trust you before he is expected to do "scary things". She was more that receptive and very nice. I told her that I had told him that he didnt have to do anything he didnt want to do, so please dont force him. She agreed and the class went wonderfully! He actually really had a great time and did things that I never thought he would, at least THAT day. I feel better now. I want him to succeed, there just needs to be a different approach. Emmy, now shes ready to move to the next class already. She's having a ball. I got a few pics to share.

Sensory Overload mixed with hunger...Not good.

So we went to my niece Holly's school program last night. I of course wanted to see her get up on stage and receive her awards but I also had other motives. Emily is going to that school next year, which is a Chrisian private school and I wanted her to see what went on and possibly meet some people so she has an idea of what she's getting into. To the average person, it was a great program. They had awards, slide shows, music...very touching and emotional for the parents. Emily enjoyed herself for the most part and sat really well through the 1 1/2 hr program. Avery on the other hand, not so good. Its usually the opposite. Not this time. As soon as the music started, he started to melt down. First, holding his ears, then whining and saying he wanted to go home over and over and OVER....He has had a cold and wasnt feeling well which leads to not eating his dinner very well because he coughs, gags, then pukes...fun. So by this time of night, he was probably hungry. Your wondering why I even went to the dang program...ya, me too at this point. Anyway, just had to get through it. I guess I should have left the room because we were getting "looks" from others but no, I didnt. I just kept torturing myself, Avery, and the others around us. Again, why was I there??? Oh ya, Holly and Emily. I didnt want to miss Holly's awards. By the time it was over, he had a bright red face, snot running down his face and was royally pissed off at me and was hitting me. I took him out at that point to get a drink. Did I mention the air conditioning wasnt on and we were all sweating like stuffed pigs??? Ya. I was ready to just go home. Afterwords,everyone wanted to go to Sizzler to eat and I had planned on declining because, well, the hell we just went through, but no. Avery insisted on going to get something to eat...I guess I couldnt blame him. We went, he ate, and he was a totally differnt boy. Ahhhh. Thats the Avery I know. Have I learned my lesson. Yes. For now, I guess.

What a great weekend!!!

Sunday was the big day...The 35th. I feel so old. Even though I feel old, I had a great birthday. Let me back up a bit. Ive had a great week. Thursday, I went to the long awaited visit to The Cheesecake Factory.. Yum-O!! Dad took me there for my b-day and boy was it good. We shared fish and chips and a garlic pasta dish that was amazing then topped it off with a HUGE peice of Rasberry Lemon cheescake which I had to take home and eat over the next two days, it was so big. Thanks Dad. Then on Friday, my hubby took me to Market Street Grill for a dinner date...again...Amazing food. (quick insert, I ate way to much this weekend, hence going to the gym today...)Anyway, I had halibut and of course I had to try the fruit tart for desert. Soooo good. It was a very nice night..Thanks Jared. Sunday, being the big day, I headed up to Ogden with the kids and mom and I headed out for some heavy duty shopping. I found some great clothes and some great deals. One of my fav. ways to spend a birthday. Shopping and eating. Yes, we went out to dinner again...Kobe. Japanese. Amazing. Even the kids had a good time. Well, mostly just Emmy but it was great. Its one of those places where they cook right in front of you at your table. Tons of food, we were stuffed. But, we had to go home and have cake and ice cream. I had requested spice cake and boy it was a yummy treat after the great meal we just had. Thanks Mom and Russ.

Monday, Memorial Day. It was a great one too. Started off by taking a quick trip to Bed, Bath and Beyond for a couple more birthday treats. Then we went to vistit Grammers grave. She had had many visitors yesterday. We all wanted to pay our respects. You are terribly missed Grandma. I love you.
Then it was off to Dinosaur Park for a huge family picnic...The kids had a great time playing and going through the museum and I got lots of great pics. Ave got to reunite with his buddy, Tori. Oh, he was a happy boy.

Heres some pics over the whole weekend.

cont....

Yes, it was passed. Me and Emily have been sitting on the toilet and holding a bowl. Need I say more.... Please pray for us...Gotta go lay down now.